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Neurofibromatosis Ontario

Alternate Name NF Ontario ; NFON ; NFSO ; OCR
Former Name Neurofibromatosis Society of Ontario
Location & Accessibility
Located In Community London
Address & Map
Unit 30
1814 Shore Rd
London, ON N6K 0C6
View Google Map
Intersection Oxford St W and Kains Rd
Mailing Address PO Box 91119 
Bayview Village 
Willowdale, ON M2K 2Y6
Physical Access Not Applicable
Description and Services
Description (Service) Volunteer driven health organization offering support to people living with neurofibromatosis and their families * research support * information provision * development of local support groups * awareness events * advocacy * medical liaison * family camp
Hours Telephone calls Mon-Fri 9 am-6 pm
Meetings Annual Conference in the Greater Toronto area * conferences are usually in the spring and include medical guest speakers and time to network with others with neurofibromatosis (NF)
Areas Served Ontario
Eligibility No restrictions
Application Call or email for an application
Languages English
Fees Membership - $10 per year * not mandatory for events (2019) ; None - for information by phone or email ; Method(s) of Payment Accepted - Cheque, Visa, Paypal, EMT
Service Categories Health Related Advocacy Groups ~ Neurofibromatosis ; Subject Specific Public Awareness/Education ~ Neurofibromatosis ; Therapeutic Camps ~ Neurofibromatosis ; Voluntary Health Organizations
Contact Information
Toll Free Phone 1-866-843-6376
Social Media Facebook Twitter
Primary Contact Sue Corson, President, Medical Liaison; Email:
Primary Executive Sue Corson, President; Email:
Other Details
Established 1985
Funding Fundraising ; Donations - Charitable Registration Number: 119053775 RR0001
Elections Once every two years
Print Material Literature packages * informative guest speakers * events * family camp
Resources Website
Accreditation No

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